Themes included the desire for lupus education, isolation at the time of diagnosis, emotional and physical barriers to care, and the need for assistance navigating the healthcare system. 80% were African American and 83% were from medically underserved zip codes. Results: Twenty-nine women with lupus participated in three focus groups, (n=9, 9, 11). We categorized interventions by benefits, limitations, target populations and implementation questions. Seventy-five-minute sessions were recorded, transcribed and coded thematically using interpretative phenomenologic analysis and single counting methods. Women were randomly assigned to three focus groups. Hospital-based clinics and support groups also recruited participants. Methods: From our Lupus Registry, we invited 282 women, ≥18 years, residing in urban, medically underserved areas. We held focus groups for women from medically underserved communities to discuss interventions to improve care. Objective: Systemic lupus erythematosus (lupus) disproportionately affects women, racial/ ethnic minorities and low-income populations.
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